Privacy and confidentiality
Privacy and confidentiality
The 45 and Up Study is bound by Commonwealth and State privacy legislation, including the Health Records and Information Privacy Act and the NSW Health Privacy Manual.
All information collected will be treated with absolute confidentiality and used for health research only.
No information will be released in a way that would enable an individual or household to be identified, except as is required by law. Information gathered will be stored, analysed and reported on with all individual identifying details removed to ensure total security, confidentially and anonymity.
In addition, the Study has an independent Community and Ethical Oversight Committee and is accountable to the University of NSW’s Human Research Ethics Committee.
The Community and Ethical Oversight Committee will provide community representation and ensure that the Study and the research conducted are in the public interest. The Committee will provide advice to the Scientific Advisory Committee about ethical aspects of the study and ensure that the Study retains high credibility in the community.
The Community and Ethical Oversight Committee is chaired by Philippa Smith. Ms Smith is the former Chief Executive Officer of the Association of Superannuation Funds of Australia Ltd.