Information for researchers
Sub-studies
Researchers and policy makers can apply to collect additional data via recontacting sub-group(s) of the cohort. The 45 and Up Study team will work with the researchers to organise questionnaire content, design, printing, mailing and QA and manage survey returns.
Researchers and policy makers can also apply to collect additional data via adding new individuals to the cohort (e.g., multicultural communities).
Request process:
Requests for sub-studies are made by submitting an 'Application to use linked and/or sub-study data’. To download an application form click here.
A Stage 1 application should be submitted for projects where there are plans to seek competitive funding for the project and at this stage the researcher(s) are requesting preliminary review and ‘in principle agreement’ from the 45 and Up Study Scientific Advisory Committee.
A Stage 2 application should be submitted for projects that already have funding and the researchers are requesting full review and approval to undertake a project using data from the 45 and Up Study.
The ‘Application to use linked and/or sub-study data’ is for both Stage 1 and Stage 2 applications. More detail is required for Stage 2 applications. When researchers are ready to submit a Stage 2 application they can add this detail to the Stage 1 application they have already submitted.
Approval process:
Applications are reviewed by the Study team (the Scientific Director of the 45 and Up Study and the Sax Institute Research Director) plus all members of the Scientific Advisory Committee out of session. Any uncertainty / differences in recommendations that can not be resolved by the Study team and the Chair of the Scientific Advisory Committee will be reviewed at the next face-to-face meeting of the Scientific Advisory Committee (see here for meeting dates). Applications where a resubmission has been requested or where the Study team recommend rejecting access will be reviewed by the full Scientific Advisory Committee. Outcomes of the review will be communicated to applicants within 28 days.
Access requirements:
A ‘Confidentiality and data use agreement for linkage and sub-studies’* must be signed by a representative of the organisation receiving the data.
An ‘Individual confidentiality undertaking for use of data from the 45 and Up Study’ must also be signed by all individuals who will have access to the data. To download a PDF of this document click here.
Charges (excl GST):
All costs associated with marginal work (e.g., liaison with designers, printers and mailhouse, sample selection, data management etc) will be charged at an hourly rate dependent on the size of the project. An amount as contribution to support sustainability of the 45 and Up Study starting from $32,000 per project will also be charged. For projects that are not adding new individuals to the cohort $5 per person invited to participate in the sub-study will be charged to support cohort replenishment. Sub-studies that include a linkage component will also be charged for this linkage component as described in the section for linkage studies. A quote will be provided.
*These forms are currently under review and will be made available shortly